Friday, October 27, 2017

2017.10.26

MW can't get a job. She fails every interview. She's been "black listed" by at least one employment agency. Another has told MW that they won't be able to find her work if she acts as "nervous" as she did during their meet and greet.

"What's wrong with me?" she asks.

And I have no words.

She's pinned all her hopes on an interview next week for a part time phone job. She's qualified, it is only three hours a day, and very close to home. The perfect situation.

So when the rejection comes this time, it is really going to hurt. I fear it will instigate another bout of deep depression. And, dammit, MW has been doing fairly well these days. She wakes up happy enough, anyway. Still runs around and laughs with the dog. Sure, little things set her off, but it doesn't stick. Last night, for example, she dropped an egg and flew into a rage. She found some excuse to terrorize me, yelling and screaming about a bathroom door I'd left open, but I figured it was a reaction to her own self-doubt. And, after only a few minutes, she apologized and the evening wasn't ruined.

Not bad.

However, when she doesn't get this job, I foresee her attitude plummeting hard and fast. It'll be a return of the dark days. The sleeping-in-the-closet/never-leaving-the-house days.

And at this point, I doubt we'd ever get another chance at normalcy.

***

Or, they might actually hire her. Wouldn't that be something? A postponement of the inevitable - and what's worse: never getting the job or being fired almost immediately? - but that would really boost her spirits. For awhile.

***

Last Sunday I was airing up the car's tires when suddenly a sharp spike of pain tore through my head, literally striking me blind. Tunnel vision. It was all I could do to stand up and fight back the nausea and wait for the motes to clear from my eyes. I've had migraines before, but this was unlike anything I'd experienced. It came on so quick and without warning.

Somehow I was able to hide the condition from MW and, even more impressive, drive home. Then I gobbled some Advil and got in the shower until I felt half-way human.

It is Friday now and my head has not stopped hurting. The pain isn't as intense (of course, or I'd be dead), it has settled into a dull throb, but it is constant. I'm eating Advil like M&Ms. I've been waking up at four every morning with a splitting headache. Sleep is impossible.

I've no idea why. A couple of thoughts - I was squatting when it happened, so maybe my hernia got pinched? Also, I had stopped drinking; so maybe withdrawal?

Or, could it be, just nerves?

***

In mentally playing out end-game scenarios to this waking nightmare - none of which are tolerable - I've recently become aware of something I've overlooked. A few times in the past, when confronted with something she couldn't handle, MW just broke away entirely. She stopped talking about the problem, changed the subject, and wouldn't allow it to come up again. She just talked louder, shouting over the person who was trying to discuss the issue.

This never happened with anything Huntington's related, but other family dramas got the shut-out treatment. If she didn't want to hear it; she wouldn't hear it, and that was the end.

What if that's how it ultimately plays out with HD? When it gets to the point where I simply can't allow her to drive or be unsupervised - and she blocks it out. Refuses to deal.

Then what will I do?

***

I went walking around during my lunch hour and found myself outside a Catholic Church where I experienced an odd urge to go inside. This blossomed into a desire to sit through Mass. Impossible during the weekends, but what if they had some sort of weekday, noon service for the working stiff? As I approached to see their posted hours, I noticed a crowd of people milling about the doors. Well dressed, attractive, happy people. They were getting into nice cars and talking and laughing with each other.

I left. I'll not return.

Wednesday, October 11, 2017

2017.10.11

New nightly ritual for the Monster: lay his head down and say a quick prayer - "Lord God. Don't let the morning come."

I've been corrupted beyond repair by the constant deceit. I loath what I've become. If there is speck of saintly light left in my behavior, it is too dim to even cast a shadow. 

I'm all monster. But I know no other way.

Last night MW woke me up around one in the morning to ask why it is people sometimes can't pronounce words. "Is it HD?" she asks.

"Of course not. I always mispronounce things."

Side note: I used to deliberately skip or mispronounce words around MW just to maintain the lie; but now that I've started drinking again, this is no longer necessary.

Yeah, so what? This is the kind of small, shitty lie I've been selling for years now. Not monstrous, no, because MW has clearly stated she'd rather not know if she has the disease. This lie is 100% saint!

Well, maybe not. Because it comes on the heels of this:

MW had been obsessing over the Vegas shootings. Every day, non-stop "why do you think he did it?" If you don't live in an HD house, you can't possibly understand, but when an HD victim latches onto something like this, it endlessly spirals until it becomes madness. 

However, I figured out a way to stop it. I know MW. She doesn't like scary stuff - won't even let me watch horror movies. So when she started going on again about why that Vegas guy shot up all those people, I replied. 

"Without any information, nobody can say. For all we know, it might be demonic possession."

"Don't say that," she whined, but it shut her down. She hasn't talked about Vegas since.

See? 100% monster.

***

And, of course, there's the falling, kitchen mishaps, and household hazards. What am I doing? Waiting for MW to get really, really hurt before I stop this? What the hell am I doing?

***

And yet, what if I'd told the truth last night - or any of the other endless nights? Told MW she shows symptoms of Huntington's? 

Again, I know MW. It would have ended her. Quite simply ended her.  

That's a lot of power; to end someone's life. And, fucking hell, a lot of responsibility too.

God I wish I was a better person. I wish I could figure this out.

I wish morning hadn't come today.